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LATEST NEWS

NY City Marathon and EB-Awareness Pictures

 

THE PICTURES TELL THE STORY

THE EVENT -  THE NEW YORK CITY MARATHON

THE REASON - EB AWARENESS

Ellie's father Andrew, her Aunt Stephanie, and her Uncle Michael ran the New York City Marathon on November 6, 2011 to bring awareness to EB. The goal was to spread awareness by selling 1,000 green shoelaces. All of the money raised will go directly toward funding research through the Jackson Gabriel Silver Foundation so that Ellie can lead a better life and we can find a cure for EB!

There are still laces left ... Please Contribute!

1000 LACES - FIND A CURE FOR EB

 

THE RUNNERS

Ellie's father Andrew, Aunt Stephanie and Uncle Michael Tavani
Ellie's father Andrew, Aunt Stephanie and Uncle Michael Tavani

 

ELLIE, RUNNERS AND FAMILY AT MILE 8

Dad, Aunt Stephanie, Andrew (Ellie's dad), Uncle Michael, Shawn (Ellie's mom), and Ellie Tavani
Dad, Aunt Stephanie, Andrew (Ellie's dad), Uncle Michael,
Shawn (Ellie's mom), and Ellie Tavani

 

THE RACE ON NOVEMBER 6, 2011

Pictures Tell The Story
The Runners on Race Day in New York
 
At The Finish Line!
CONGRATULATIONS TO OUR RUNNERS
ANDREW, STEPHANIE AND MICHAEL
AT THE FINISH LINE!


THE RESULTS

Not only did our three runners finish the NY Marathon to raise EB Awareness, 1000 Laces has raised more than $22,000 for EB Research. 

Buy a Pair of Laces Today ...

IT'S NOT TOO LATE TO BUY A PAIR OF LACES TODAY!