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LATEST NEWS

Annual EB Awareness Walk - October 29, 2011The Tavani Family Runs the NY Marathon

Ellie's father Andrew, Aunt Stephanie and Uncle Michael ran  the New York City Marathon on November 6, 2011.  spreading awareness about EB.       See Pictures/More ...

 

Annual EB Awareness Walk - October 29, 2011Join Ellie at EB Awareness Walk

The Tavani Family prepares for the 2011 EB Awareness Walk to be held on Saturday October 29th at 9 am at Chastain Park tennis courts.

 

Ellie, Andrew and Shawn met funnyman Will Ferrell

Ellie Meets Will Ferrell

Ellie, Andrew and Shawn met funnyman Will Ferrell this recently at the Mats Wilander Celebrity Tennis/Golf Classic supporting DebRA.

 

 

CBS Reports on Ellie Tavani and EB Awareness

Ellie on the CBS News

A CBS news crew spent some time recently with Ellie, Andrew & Shawn. The segment on Ellie and the Fundraiser aired on CBS Atlanta News at 11 PM. Click here to watch the video "Family's Touch Painful For Girl".

 

 

EB Awareness Week Resolution Passes in Georgia

On April 1, 2009 Georgia House Resolution 282 passed, which will recognize EB Awareness Week this October. Ellie made her second appearance at the Georgia State Capitol in Downtown Atlanta. watch video | Read HR 282

Hands Blistered by EB

 

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