ANNUAL EB AWARENESS WALK

The 4th Annual EB Awareness Walk
Butterfly Wishes for Ellie - Walk with us to promote health

We thank the more than 125 walkers who joined us at Chastain Park in Atlanta to promote awareness regarding the worst disease you have never heard of.

Just imagine being wrapped in bandages every day to protect yourself from everyday activities like getting dressed or walking. Imagine being afraid to hug your child for fear of causing blisters that will take weeks to heal. These are the things that make each day so difficult for the families who struggle with EB.

Ellie and the Tavani family extend a heart felt thank you to all who attended and all who contributed so generously to promote the awareness and cure of this debilitating, painful disease.

Note: Contributions to the cause will not be refused.

EB Awareness Walk Down Memory Lane
Browse Our Event Pictures

Ellie and the Tavani Family wish to thank everyone who participated. Everything went well and Mother Nature even cooperated to bring more awareness to EB. Here is some of the fun ... we look forward to seeing you next year!

Please Join in the Fun Next Year.
Sign up for our newsletter in order to stay informed.

Annual EB Awareness Walk
Fun For Everyone Each Year

Butterfly Wishes for Ellie hosts the annual EB Awareness Walk to help raise awareness and find a cure for EB annually in October. The walk kicked off Epidermolysis Bullosa (EB) Awareness Week in the State of Georgia and throughout the United States.