The 4th Annual EB Awareness Walk
We thank the more than 125 walkers who joined us at Chastain Park in Atlanta to promote awareness regarding the worst disease you have never heard of.
Just imagine being wrapped in bandages every day to protect yourself from everyday activities like getting dressed or walking. Imagine being afraid to hug your child for fear of causing blisters that will take weeks to heal. These are the things that make each day so difficult for the families who struggle with EB.
Ellie and the Tavani family extend a heart felt thank you to all who attended and all who contributed so generously to promote the awareness and cure of this debilitating, painful disease.
Note: Contributions to the cause will not be refused.