Butterfly Wishes for Ellie
Sunday, October 25, 2009
Join Ellie in a walk around the Chastain Park loop on October 25, 2009 at 1:30 pm. The walk kicks off Epidermolysis Bullosa (EB) Awareness Week in the State of Georgia, which Ellie helped pass at the Georgia State Capitol in April.
Join Ellie in the walk >
Ellie on the News (4/22) - A CBS news crew spent some time this afternoon with Ellie, Andrew & Shawn. The segment on Ellie and the Fundraiser aired Wednesday night on CBS Atlanta News at 11 PM (WGCL; Channel 9 on Comcast). It will re-air on Thursday (4/23) at Noon. Click here to watch the video "Family's Touch Painful For Girl".About the Event: The Third Annual Evening Under the Stars Benefit & Silent Auction is 6:30 pm on April 23rd at Park Tavern in Atlanta. A silent auction will take place from 6:30-9 pm, Master of Ceremonies & Comedian Jed Fearon will run the show with music by the Atlanta Swing Orchestra. Event Details | RSVP/DONATE
Latest News: On April 1, 2009 Georgia House Resolution 282 passed, which will recognize EB Awareness Week this October. Ellie made her second appearance at the Georgia State Capitol in Downtown Atlanta. watch video | Read HR 282
Butterfly Wishes for Ellie is an annual event in honor of Ellie Tavani, a beautiful little girl who was born in April 2006 with Epidermolysis Bullosa (EB).
Our 3rd Annual Butterfly Wishes For Ellie Benefit and Silent Auction will be held on April 23, 2009 at Park Tavern in Midtown. Money raised at this event will benefit the Dystrophic Epidermolysis Bullosa Research Association of America (DebRA). Our goal is to raise $40,000 that DebRA will use for research funding and to assist other families like ours who are dealing with the daily struggle of EB.
DebRA provides funding for research of EB and support for families who suffer from the disease. Donations and tickets to the event are tax deductible.
